Are you better yet?

When I first got sick in early 2022, people sent me good wishes: “Get better soon.” Doctors told me: “Most people get better from Long Covid within a few months.” So, I planned to work a reduced schedule for a…

About acceptance

One cannot talk about hope without talking about acceptance, because acceptance is often mistaken for “losing hope.” The reality couldn’t be farther from the truth. Acceptance and hope are not mutually exclusive; the question is, “Hope for what?” Ever since…

About hope

Hope: a feeling of wanting and expecting a particular thing to happen; something that you wish for. (Oxford dictionary) As a chronically ill person, how often do you hear “Do not lose hope”? News about supposed recoveries or scientific breakthroughs…

What is myalgic encephalomyelitis?

Myalgic encephalomyelitis is a severe, chronic neuroimmune disease that impairs multiple bodily systems, including the nervous, immune, and metabolic systems. The hallmark feature of myalgic encephalomyelitis is post-exertional malaise (PEM), or, more accurately, post-exertional neuroimmune exhaustion (PENE), but PEM is…